It's the 9th annual D-Blog Day and this year's topic is '6 things you want people to know about Diabetes'. So here goes.
1. Just because it says Sugar Free, does not mean my kid can have it without permission from me, a finger poke, or a bolus.
2. Just because it's got sugar in it does not mean that my kid can't have it at all.
3. Korky's Type 1 Diabetes is not the same as your Grandma's Diabetes, in fact Kork's Great-Grandma (my Grandma) has Diabetes, and Korky's paternal Grandpa (Brian's dad), and paternal Great-Uncle (Brian's uncle) had it too. She didn't get it from them, they have Type 2, big difference.
4. Yes, my kid loves candy and sugar and treats, when she was little like 2 or 3 she'd wake up in the middle of the night, like 2am, sneak some candy and turn on the TV. That is not the reason she developed Type 1 Diabetes, nope, it wasn't because she ate too much candy. She just happens to be born with a faulty pancreas. Again, she was born with a faulty pancreas, we did not damage it.
5. If she says she needs to check her BG, then she needs to, she's not doing it for attention. If she falls asleep or goes droopy all of a sudden, then something is wrong. Give her some kind of sugar, then check her BG, it can be scary, but try to stay calm. You'll have time to freak out or break down later. If she starts 'freaking out', crying uncontrollably, fighting with you, yelling at you and yes even hitting you, then again something is wrong, talk to her in a calm voice, check her BG or get her to do it, give her a correction, call me and let her lay down for a rest. Don't let it hurt your feelings, she never remembers what she did, she didn't mean it, she still loves you.
6. I may seem calm, I may seem like Diabetes doesn't affect me, I may seem like I'm not overwhelmed, like I'm not thinking about it all the time, like I'm not completly freaked out. It's just a facade, I am always thinking about D, I am always worried. I struggle to trust Korky with herself and to let her have some independance, in fact I struggle with letting anyone take care of Korky, even my own husband her dad. I know he should be my number 1 and I do trust him, but I still struggle with it internally. I am not sure if it's trust I struggle with or fear or a combination of both.
7. I have one more.... Diabetes doesn't define Korky, or me either for that matter. It doesn't have to take center stage. There's more to us, but on the flip side, I appreciate your concern, your willingness to learn and you're desire to help us.
1. Just because it says Sugar Free, does not mean my kid can have it without permission from me, a finger poke, or a bolus.
2. Just because it's got sugar in it does not mean that my kid can't have it at all.
3. Korky's Type 1 Diabetes is not the same as your Grandma's Diabetes, in fact Kork's Great-Grandma (my Grandma) has Diabetes, and Korky's paternal Grandpa (Brian's dad), and paternal Great-Uncle (Brian's uncle) had it too. She didn't get it from them, they have Type 2, big difference.
4. Yes, my kid loves candy and sugar and treats, when she was little like 2 or 3 she'd wake up in the middle of the night, like 2am, sneak some candy and turn on the TV. That is not the reason she developed Type 1 Diabetes, nope, it wasn't because she ate too much candy. She just happens to be born with a faulty pancreas. Again, she was born with a faulty pancreas, we did not damage it.
5. If she says she needs to check her BG, then she needs to, she's not doing it for attention. If she falls asleep or goes droopy all of a sudden, then something is wrong. Give her some kind of sugar, then check her BG, it can be scary, but try to stay calm. You'll have time to freak out or break down later. If she starts 'freaking out', crying uncontrollably, fighting with you, yelling at you and yes even hitting you, then again something is wrong, talk to her in a calm voice, check her BG or get her to do it, give her a correction, call me and let her lay down for a rest. Don't let it hurt your feelings, she never remembers what she did, she didn't mean it, she still loves you.
6. I may seem calm, I may seem like Diabetes doesn't affect me, I may seem like I'm not overwhelmed, like I'm not thinking about it all the time, like I'm not completly freaked out. It's just a facade, I am always thinking about D, I am always worried. I struggle to trust Korky with herself and to let her have some independance, in fact I struggle with letting anyone take care of Korky, even my own husband her dad. I know he should be my number 1 and I do trust him, but I still struggle with it internally. I am not sure if it's trust I struggle with or fear or a combination of both.
7. I have one more.... Diabetes doesn't define Korky, or me either for that matter. It doesn't have to take center stage. There's more to us, but on the flip side, I appreciate your concern, your willingness to learn and you're desire to help us.
I still surprised how many people think sugar causes type 1 diabetes. I mean, really? Then ALL CHILDREN would have diabetes. That just doesn't make sense to me.
ReplyDelete#6 got me. I know that facade all too well.
ReplyDeleteGood list!
I hear ya!
ReplyDeleteAt the time of my daughter's diagnosis she had been vegetarian her entire life, had never had juice, and had only had candy on special occasions. She was the healthiest kid I knew!